spectrumom

I've been reading some BS on the webs about how some parents of kids with autism have some butt-hurt because they don't have the kids they wanted. And from the way it's worded, it sounds like it's most of us. So I wanted to put it out there what I'm butt-hurt about. I'm hurt that my kid hurts himself. I'm hurt that he hurts others. I'm hurt that other people, both peers and adults (HELLOOOOO asshole teachers) bully my child and think he is less than respect-able. I'm hurt that people assume my kids are not able because they have a difference. I'm hurt that their lives will be limited by that, in some way. And already have been (like not invited to their class parties, hmmm?) I'm hurt that my kids are not always able to speak for themselves. I'm hurt that my kids cannot choose for themselves. And, I'll admit to some butt-hurt that my life is often difficult because I put my kids' needs ahead of my own (I really,...

A post I wrote in May, but never published.  It's unfinished, but I left it that way, since how I feel now is different and cannot be truthful to my thoughts in May.   Isaac was 6.5 years at this evaluation. Isaac was diagnosed with 'pretty classical' Asperger's yesterday. And I felt pretty good about the diagnosis. Unlike the first kid, whose diagnosis was like a kick to the head. Or the second when we were just like 'get it over so he can get the frigging services we need.' He demonstrated just why he was on spectrum during the interview. The evaluation was by a very kind speech pathologist, Beth Nottingham. I felt the Robin Hood connection was a good one. She first interviewed me about my concerns. And frankly, I was glad that it had taken us 6 months to get to this part of the evaluation (although I was very frustrated during the wait) because it allowed me to get my thoughts together about where we saw problems. And then, the ADOS. A very inte...